Friday, September 28, 2012

My First Entry


Okay, I am really just starting this blog for me. Its my therapy to write out my thoughts and prayers and things that trouble me. It helps me to sort out life. And right now, life is confusing and scary and big.

I am thankful that I know Jesus Christ to be my savior. I cannot imagine going through this life without my Lord. He is my Hope and my Salvation. In no way do I put any blame on Him for the things He has allowed in my life, but know that everything happens for a reason. They happen to grow me and glorify my God.

Today on the Facebook support group for PH, I read about yet another young soul who lost his fight with PH. He was diagnosed at 5 yrs old and passed in his very tender age of 18.  I love this support group. Each day I log on,  I learn more from patients about this disease and tips on how to deal with O2, side effects from meds, tests, things to watch for and life in general. But I also read so many times a week of yet another person who has lost their battle. They seem to be going along and then they are gone. Is this how the disease progresses...here today and gone tomorrow?  Or did these people have warning or complications?  I hope to get more answers in the next few months to my many many questions.

I read a verse today that I want to remember:
2 Corinthians 4:16-18
So we do not lose heart. Though our outer self is wasting away, our inner self is being renewed day by day. For this light momentary affliction is preparing for us an eternal weight of glory beyond all comparison, as we look not to the things that are seen but to the things that are unseen. For the things that are seen are transient, but the things that are unseen are eternal.